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Topic: My sister's in the Emergency room
Message: Posted by: Jaxon (Sep 15, 2005 11:08AM)
A couple of days ago my sister went to the emergency room. She was twitching and had pains in the chest and neck. They tested her heart and all that and couldn't find out what was causing it. They scheduled a MRI test for this afternoon (2 days later). She seemed to be doing better but this morning her daughter called my parents at 6am then called 911 because my sister had collapsed on the bathroom floor.

She seems stable right now and they are giving her the MRI test as right now. They are thinking either some kind of seizure or even possibly a mild stroke. She's only 7 years older then me so she's 42. I'm home now just to get a bite to eat then I'm heading back to the hospital.

I'm sure many of you have read about the kind of year I've had this year. Makes things like this even more scary after so many losses this year. I'm trying not to think like that but it's not an easy thing to do though.

Ron Jaxon
Message: Posted by: Daveandrews (Sep 15, 2005 05:20PM)
Ron, we don't know each other, but I have read your other postings.
I do hope they find out, and sort out, what is wrong.
You are both in my prayers.

Dave
Message: Posted by: asper (Sep 16, 2005 08:16AM)
Ron,

You, your family, and your sister are in my prayers. Stay strong.
Message: Posted by: Cliffg37 (Sep 16, 2005 09:02AM)
She and your family will be in my prayers tonight

God Bless

Cliff
Message: Posted by: Jaxon (Sep 16, 2005 01:09PM)
She came home for a few hours yesturday but she had a couple of seizures. The third seizure was pretty strong so we took her back to the hospital whre she is right now. They still aren't exactly sure what's causing them yet. Still running tests to find out. She's never had a seizure before and she's had 12 of them since all this started (in one week). Had 5 of them yesturday.

Thanks everyone.

Ron Jaxon
Message: Posted by: JesterMan (Sep 17, 2005 01:09AM)
Best of luck, Ron!
Message: Posted by: Jaxon (Sep 19, 2005 02:49PM)
Thanks everyone.

BAD NEWS!

They found out it's a brain tumor called Oligodendraglioma in her Left Medial Posterior Temporal lobe.

She's going to be taken to another hospital but we're wating to find out where and when. It's not looking good. We don't have much information yet but some things where discussed. They made mention of a brain operation but if they happenes it won't be for a couple of months or so. They said that because of the location of teh tumor that if they do go that route and it is successful then she'll probably lose some of her eye site. That's really got her down on top of everything because she's already hearing impaired (not quite deaf like me but she's profoundly hard of hearing).

Thanks again for your support and prayers.

Ron Jaxon
Message: Posted by: Daveandrews (Sep 19, 2005 05:35PM)
Ron, really sorry to hear that news.
Do keep us up to date and look on the positive side - although I'm sure you will.

Dave
Message: Posted by: Ed Hutchison (Sep 19, 2005 11:39PM)
I hope it will be of some comfort to you to know that you are in the thoughts and prayers of many of us.
Message: Posted by: Bob Sanders (Sep 20, 2005 08:41AM)
Ron,

Sorry to hear that the problems aren't over. We will be thinking about you. Mom went the operation route and the falling stopped. TV and driving gave her some problems that with her new vision made them unworkable, but she could still read, play board games, enjoy walking and talking and could carry on well enough that for her age that most saw no major problem. At age seventy-eight (in 2000), she was in our wedding pictures and still enjoying herself. It's a change, but many things do.

Keep us posted.

Bob and Lucy
Message: Posted by: Margarette (Sep 20, 2005 07:14PM)
Jaxon, I will keep you and your family in my thoughts and prayers.

Margarette
Message: Posted by: ruaturtle (Sep 20, 2005 07:29PM)
Your sister, family, and, of course, yourself are in my prayers... Would cards, etc. help to lift your sisters spirits?
Message: Posted by: Jaxon (Sep 20, 2005 07:52PM)
Thanks everyone.

Right now not much of anything will lift her spirits right now. She's under a lot of medication right now and when she is in a state that she can talk and think strait she's very depressed and scared. Of course this will be scary for anyone but like I said before. She's already profoundly hearing impaired. Chances are she'll loose some of her site from this. No one knows how much but I think the though of being blind and deaf (or hard of hearing) is something that really scares her right now. At least on a conscious level. Maybe somewhere down the road cards and things like that might be nice though. Thanks for the thought.

My family is a very close family so we are all her for her every minute we can be. Her daughter is of course very scared but she's right there by her side every minute she can be. We're doing our best to keep her calm and as happy as we can. She's a very strong and brave girl.

Anyway. Thanks again everyone. I'll keep you posted.

Ron Jaxon
Message: Posted by: mark2004 (Sep 22, 2005 08:18AM)
Jaxon,

I have an aunt who had a tumour with symptoms like you describe. She had an op and made a good recovery - she had some slight side effects I think but she was able to go back to living a normal life. Don't give up hope.

You and your family are in my thoughts.

Mark
Message: Posted by: Jaxon (Sep 25, 2005 01:10PM)
Thanks again everyone.

Well, she's home now and the seizure seem to be under control. She'll be going to a different hospital (In Ann Arbor, MI) on Oct. 4th.

The best news we've heard is that the doctor is pretty sure it isn't a cancer tumor. We'll find out for sure when she goes to the specialist in a couple of weeks.

Thanks again everyone.

Ron Jaxon
Message: Posted by: RandyStewart (Sep 25, 2005 01:22PM)
Well many special wishes and prayers are with her Jaxon. No sweat. Keep up the morale no matter what. This is only a test.
Message: Posted by: Daveandrews (Sep 25, 2005 05:04PM)
Thanks for the update Ron - we will keep you all in our prayers and thoughts.

Dave
Message: Posted by: Bill Ligon (Oct 5, 2005 11:39PM)
Wow, Ron! My thoughts and prayers are for your sister, you and your family. Words are inadequate, but I hope all turns out well!
Message: Posted by: Lee Darrow (Oct 6, 2005 10:58PM)
Ron, all our prayers for you and your family!

Lee Darrow, C.H.
Message: Posted by: Jaxon (Oct 11, 2005 02:47PM)
Thanks again everyone.

I figured I'd just stop in here and give an update on my sisters condition. It turns out that because of where the tumor is in her brain they aren't going to remove it. From what I understand the risk of doing that is greater then the risk of not removing it. In other words there's a good chance she would not survive the surgery. Even if she did survive it there may be some very serious complications.

So they are going to monitor it for now to see if it grows or just stays the way it is. If it does not grow then there may be other options such as radiation and chemo to possibly shrink it. They also mentioned that they might use drain fluids from her brain around the tumor with a needle type thing.

So right now it's all about controlling her seizures while waiting to see what happens. Right now she seems pretty much like her "normal" self. Tired, frustrated and scared of course but she's walking around and doing her best to take care of her daughter. Every once in a while the tumor would effect her memory. She laughed earlier today because she was talking and said the wrong word. Her tumor is causing her to do things like that. Kind of making her mind play small tricks on her. It's not a funny thing but I suppose it's god she's able to have a sense of humor about it a little.

Thanks again everyone.

Ron
Message: Posted by: Big Jeff (Oct 11, 2005 02:49PM)
Jaxon, you and your family are in my prayers. I know what its like to have a sister who is sick.

God Bless you,

Jeff
Message: Posted by: Professor Piper (Oct 24, 2005 08:48PM)
Jaxon...

Speaking as a person who had a tumor that was unremovable I can say that there IS hope...I went the Radiation and Chemo route and it worked...

Never lose hope and be very grateful for the wonderfully loving family you obviously have...

God Bless you all and you and your family will be in my prayers.

Prof. Piper
(Terry)
Message: Posted by: Jaxon (Dec 26, 2005 01:49PM)
Thanks again everyone.

Well, things where starting to look better for my sister. She is on some medication to control seizures. Eventually they'll start the radiation and chemo to try and shrink it. She started working again. Only a couple of days a week in four hour shifts. She needs the money of course because she has a daughter at home but her job is mainly just giving her something to do with her time. She can't do much though. She's very weak and 4 hour shifts is about all she can handle.

Like I said, things where looking better but at the moment they're not. Yesterday was Christmas. While my family was opening their presents she had a seizure. A pretty bad one. She's still home right now but she's not doing all that good at the moment. I can't stand it right now. The feeling of hopelessness my entire family is feeling because there's really nothing we can do. Yes, we're all here for her and I know us being there for her helps but that doesn't take away the feeling of wanting her to not be in this situation.

My heart goes out to those who have been through this such as you Professor Piper. Not only you but your family and loved ones. Thanks for sharing that you where able to over come it. That thought is in the back of my mind and I'll try to remember it.

Thanks again for listening everyone.

Ron Jaxon