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The Magic Cafe Forum Index » » Not very magical, still... » » I may not be deaf much longer! (0 Likes) Printer Friendly Version

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Jaxon
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Thanks guys.

I decided on the Cochlear Freedom brand today because they told me that a new model will be out by the time that I'll be able to get mine that's much smaller (The external part) yet has all the same features.

I also got a Pneumococcal Polysaccharide Vaccine shot today for it. I found out this is because there's a small chance (1/1000) that the surgery has a low risk of meningitis. So the vaccine helps prevent that.

I found out some interesting things today about it. They gave me a list of possible risks involved. I know that seems bad but what surgery doesn't have them. None of them are very serious though in this case. Most of them would just be a minor and temporary nuisance if they happened anyway. For example there are two nerves that could possible get damaged. One is for taste buds and if this happens I'd just have a strange taste in my mouth for a few weeks but would go away. Another nerve is the nerve that controls the facial muscles on that side of the face. Which means the side of my face would (Temporarily) become paralyzed. But both possibilities are treatable and very rare (Like 1/300 chance).

So, I'm sure you can imagine a lot is going through my mind about it. But mostly just waiting and waiting. I'm one step closer thanks to today's appointment though. Unless something comes up the next letter I receive should be the appointment for my surgery.

Ron Jaxon
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After regaining my ability to hear after 20 years of deafness. I learned that there is magic all around you. The simplest sounds that amazed me you probably ignore. Look and listen around you right now. You'll find something you didn't notice before.
landmark
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within a triangle
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Wishing you the best Ron. Thanks for sharing all this with us--it's really enlightening.

Jack
Sam Weiss
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Wow... great story... I think all of us at the Café will be hoping the best for you Ron Smile

I think what's really cool is that you have such a positive attitude towards your deafness that you can joke about it to everyone and be happy... you rock man... hope everything goes to plan Smile
"There's something that gets in your soul when you study magic,it's in your heart, and when you perform it comes across the footlights and into everybody else's heart..."
-Denny Haney
Douglas Lippert
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E Pluribus Unum
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I hope everything works out great Ron!
Douglas Lippert
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Corona Smith
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Airstrip One
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Best of luck Ron!
Jaxon
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Kalamazoo, Mi.
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Thank you everyone.

I'm just sharing my experiences as they come on my road back to sound. I figured some might find if a little interesting.

For a couple of days I've been waking up soaking wet from sweating because of a fever. The fever is a side effect from the vaccine I got. They said there might be some minor side effects from it. Was annoying for a couple of days but not too bad. I didn't feel sick at all or anything.

Below is the graph of my latest hearing test when I was evaluated for the Implant.

Image


To give you an idea of what this means. Here's a graph that illustrates how to read it.

Image


As you can see. The further down the graph you go the louder the sound.

It also shows the pitch of the sound. Kind of like the keys of a piano. The far left is low pitch and the pitch gets higher toward the right.

The yellow banana shape represents the pitch and volume most speech is in. So as you can see I can't hear speech at all.

Here's a picture of the implant I'm getting. It actually won't be available for a few months because it's just being FDA approved. It's a new model from the original Cochlear Implant company. I chose this one because it's smaller then any other implant, has more features and uses less batteries. It also has a remote control that will allow me to control the volume and programs (It'll have 4 programs set to different atmosphere such as a loud room or a quiet room). Another neat feature is called smart sound. This mean if I enter a loud room for instance. It'll automatically adjust for me.
Image


Hopefully my next post will be sharing the date of my surgery.

Ron Jaxon
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After regaining my ability to hear after 20 years of deafness. I learned that there is magic all around you. The simplest sounds that amazed me you probably ignore. Look and listen around you right now. You'll find something you didn't notice before.
stoneunhinged
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This is really cool having you give updates on something so interesting, yet something I would otherwise not have given so much thought to.

I really appreciate it, and am looking forward to the details as they come.
Sixten
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Very best of luck, Mr. Jaxon, with your surgery. Smile
(We're praying that it will be a success!)

Sixten and family.
TomKMagic
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You should get one that is Bluetooth enabled, so you can talk on the phone without even needing any ear piece or the piece attached to the outside of your hear. That'd be sweet!!

Then you could truly tell people you have voices in your head.
You must be smarter than the tools you are using...

Tom Kracker
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Jaxon
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LOL

Actually the implant can work with bluetooth. I can also listen to FM frequencies. They have some things that I can hook up to a TV, computer, radio, phone, etc.. That will allow me to hear it from across a room but cancel out any other sounds near by.

Another setting it imagine I'm taking to someone in a loud room. I'll face the person I'm talking to. I'll be able to turn off background noise and just hear what's in front of me.

Pretty cool stuff. Can't wait to be able to use it.

Ron Jaxon
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After regaining my ability to hear after 20 years of deafness. I learned that there is magic all around you. The simplest sounds that amazed me you probably ignore. Look and listen around you right now. You'll find something you didn't notice before.
EsnRedshirt
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Quote:
On 2009-08-18 20:14, Jaxon wrote:
LOL

Actually the implant can work with bluetooth. I can also listen to FM frequencies. They have some things that I can hook up to a TV, computer, radio, phone, etc.. That will allow me to hear it from across a room but cancel out any other sounds near by.

Another setting it imagine I'm taking to someone in a loud room. I'll face the person I'm talking to. I'll be able to turn off background noise and just hear what's in front of me.

Pretty cool stuff. Can't wait to be able to use it.

Ron Jaxon

Wow- can you pop in an access chip and jack in to the net? That sounds like something straight out of a cyberpunk novel. Cool stuff!
Self-proclaimed Jack-of-all-trades and google expert*.

* = Take any advice from this person with a grain of salt.
Martello
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Catskill Mountains
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Hey Ron

As a former Speech Pathologist who worked with the Deaf for 32 years (President of the NY State Association of Educators of the Deaf in the 80's) all I can say is "fantastic". The implant was just becoming popular when I retired and I worked with some of the top specialists in New York City. The Total Communication school that I worked at had about 5 kids with implants when I left. Now more than half of the school has implants. You will need to work at using it since it is best suited for a younger population, but I know that it will open a whole new world for you. Yes, the deaf community is not happy with it as it corrupts the "culture". Unfortunately, the culture leaves many deaf folk so impaired that it becomes a challenge to function cohesively in a hearing world as I am sure you know. I consider deafness the worst handicap because of the many other areas it affects. Most people do not understand this. When I taught in the Deafness Dept at NYU and Saint Joseph's College I always told my students that if I were reborn I would much rather be born blind than deaf. Again, most people would not understand this. If they truly knew the deaf experience, they would know why I say this. All the best to you. Let me know if I can be of help in any way.

Arthur
Jaxon
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Hi Arthur.

Who knows. Maybe you could be helpful in the near future. My speech is one thing I do wish to improve. If you wouldn't mind a question or two every now and then that would be great.

Actually, I've run into some frustration on my speech issue in the past. I receive complimentary comments on my speech quite often. One reason is that most people think all deaf people speak the same. So when I tell them I'm deaf they seem surprised because in their mind all deaf people spoke "Deaf speech" (Very slurred). But what they don't realize is that there's a big difference between becoming deaf later in life and being born deaf. I could hear when I learned to speak so my speech isn't as slurred. Even I can't imagine how hard it would be to learn to speak if I had never heard speech before.

But here's where my frustration has come from. Twice I seek out professional help to improve my speech. They both basically said the same thing. They say I don't need help because my speech is already good considering the level of my hearing loss. This really annoyed me because I didn't want my speech to be just "good enough". I wanted to improve on the level I was already at.

Right now my speech is for the most part understandable. They say a slight slur from time to time. It's at the point where most just think I have an accent. My friends say that at first they heard it but after a while they don't even hear a difference anymore.

Yet I know it's there and I'm willing to work hard at improving it. But the problem is the "Specialist" I went to didn't seem interested in helping me improve. They seemed to think that since it's good for my hearing loss level then I don't need to improve. I disagree. I know it can improve more. I just can't do it alone.

So what I need is a specialist who is willing to be bluntly honest. One that will tell me what I'm not say perfectly clear and help me improve on that sound. Especially as an entertainer. I don't want "Good enough". I want to correct it. I still get looks and people telling me they didn't understand what I said.

I've spent a lot of time working on this issue. I usually just have to repeat what I said slower. So I'd go to placed like open mic nights (Even ones that are usually for bands) and I'd go up there and perform just to practice speaking to an audience. I'd read out loud to someone and have them tell me when they don't understand what I say (it isn't easy to find someone honest with me on that though).

So, when I get this implant I hope this will aid in this. Then I want to find someone to work with me that will realize that with my speech my goal isn't to be "Good enough". It's to master the ability to speak clearly.

I do have realistic intentions though. I know the implant isn't a miracle cure. But I'm sure it'll be helpful.

Ron Jaxon
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After regaining my ability to hear after 20 years of deafness. I learned that there is magic all around you. The simplest sounds that amazed me you probably ignore. Look and listen around you right now. You'll find something you didn't notice before.
Martello
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Catskill Mountains
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Ron

You can ask me anything you want either here or privately via pm or email. Please feel free to do so. I totally understand what you are saying regarding people's feelings about "deaf speech". The amazing thing about you is that you are more than willing to improve. I have worked with more deaf kids than you could imagine over a 32 year period and people like you are rare. I did private therapy at times but it was mostly because the parents wanted their child to have better speech. The kid could care less and this in itself was a stumbling block. The fact that you had hearing for some time is also a major bonus as you say. `The impairment of language is the most debilitating thing about deafness. Thankfully, you have this skill. On facebook I have connected with many "old students" and the text is often difficult to understand due to the language impairment. Don't listen to the people who tell you that you cant improve. Of course you can. Perhaps they just don't know how to help you. I have heard you speak on some of the DVD's I have and must say that even I was "fooled" at first. Your speech is very good but it can get better. Too bad you don't live near the god forsaken place in NY State that I presently live or I would tell you to stop by. In any event, lets stay in touch. I will try to assist you in any way I can.
MagicSanta
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Good for you Arthur! My little brother had a sever speech problem and the speech pathologist at Stanford took him from that to speaking without any noticeable problems very quickly. I don't know what they did as I was in the Navy at the time but one day I saw him and he couldn't really talk and next time he was fine. Amazing work you guys do.
Martello
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Thank magicsanta! It can be frustrating and thankless most of the time but there are moments that make it worthwhile. People like Ron are few and far between.

Arthur
Jaxon
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Great news.

Got a letter in the mail and insurance has finally authorized it. So now I just have to wait and see when the surgeon can schedule me in.

One step closer now.

Ron Jaxon
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After regaining my ability to hear after 20 years of deafness. I learned that there is magic all around you. The simplest sounds that amazed me you probably ignore. Look and listen around you right now. You'll find something you didn't notice before.
Sixten
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Don't you just love it when a plan starts to 'finally' come together?

Prayers are still with you, Mr. Jaxon.
Best of luck!

Sixten and family Smile
Bob Sanders
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Jaxon,

That is great news! CONGRATULATIONS!

Bob Sanders
Magic By Sander
Bob Sanders

Magic By Sander / The Amazed Wiz

AmazedWiz@Yahoo.com
LobowolfXXX
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Ron --

Fantastic! Very glad to hear this.
"Torture doesn't work" lol
Guess they forgot to tell Bill Buckley.

"...as we reason and love, we are able to hope. And hope enables us to resist those things that would enslave us."
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